This is our last week of summer break. Its been a nice 5 weeks. We’ve had a nice birthday celebration (simple, no fuss), a trip to the lake with lots of swimming, fun at home, playdate with friend.
The most amazing thing this summer break has been how her skills have been progressing. Each day she amazes me more and more how much I see her use her left hand. Walking around holding a toy in her left hand (and not her right). Using her left hand to hold a cup. Speaking of cups, we rejoice that sippy cups are gone! I’ve kept a couple around to have when going in the car and I need to give her something to drink. She still needs the spill proof valve when someone isn’t right there with her. Otherwise its all big kid cups. Open cups, cups with straws, cute kiddie thermos cups. The thermos cups are our next step, since when out and about you may want a cup you can have a good lid you can close. The open cup is still a learning process. She is prone to tipping the cup to much and giving herself an unwanted bath. Someone needs to have their hands right there to help her guide the cup.
Yesterday she actually enjoyed finger painting. This is a girl who has always balked at arts and crafts activities. We’ve still got a long way to go on coloring. But I have the “right” crayons now. They are these super cool crayons called “Crayon Rocks”. Now I know you may think that you can easily melt crayons into smaller “rocks” to hold. Yet that isn’t what makes these crayons so great. They are awesome because of how easily they write on the paper. Such light touch and you have coloring. It is perfect for kids who may rake the crayon across the page and not understand applying pressure to the crayon.
Seizure control has fallen victim to the facts of LGS (her seizure disorder). Seizures are hard to treat, and often are resistant to medications. A medication may work for a while then stop. We’re seeing this now with Onfi. Heartbreaking, but all the while I always feared we were simply in a honeymoon period. I was determined to enjoy it while it lasted. Nothing more, nothing less. Onward and upward to the next option I guess.
We went to the lake over summer break. I worked out a new situation with some floats for Becca and she really enjoyed some new freedom in the water. As usual she loved the boat rides.
In a month my brother and his family come to visit. I haven’t seen them in about 8 years. Yep, that means they have never met Rebecca. I’m so looking forward to seeing them all. My nephews and nieces are all growing up!
Well, I reckon that is about everything for the past 5 or 6 weeks since my last update.