Tuesday, January 2, 2007 7:24 PM
Christmas was wonderful. Rebecca had a great time, trying to unwrap her presents. She was a little overwhelmed by all her new toys, but she is very happy. Today was her second Chemo treatment. All went well. Because the antibiotic we give her three days a week was interfering with her blood counts we have had to switch to a different type that is given through an infusion once a month.
Happy news to report that Rebecca is crawling now. Not far and not much yet, but its still in the first few days of crawling. Thank you to everyone for your prayers!
Friday, January 26, 2007 9:31 AM
Rebecca’s Chemotherapy has continued to go well. Tuesday January 30th is her next dose. Chemo days prove to be very long days at Duke. We are very blessed to have dinner provided to us those nights. It is so wonderful to come home and not have to worry about fixing dinner after spending all day in clinic.
Rebecca’s antibiotic has been changed from something we give her 3 days a week to something she gets once a month, the week before chemo. The previous antibiotic was causing her blood counts to get all messed up. The antibiotic is to help prevent her from catching anything since her immunity is low.
We went to the eye doctor recently. Because the left eye has such poor vision and is “lazy”, we are now patching the right eye for two hours a day, every day. This will force her to use the left eye more and make it get stronger. She isn’t happy about it, but is tolerating it. Developmentally she is doing great. she loves to pull up to standing on anything she can get her hands on. She cruises pretty well on furniture, and walks holding onto someones hands. She loves to “sing” and babble. Our Becca is still our cuddle bug. Right now she is pulling on the laptop trying to get my attention.
Friday, February 16, 2007 9:58 AM
Things continue to go well for Rebecca. We’ve had a small personal hurdle of sleeping issues, but alas I think she is finally doing better at night again.
Rebecca’s next Chemo is set for February 27th. That is also the day of her first MRI after the Chemo has begun. This will tell us if we are going to continue on the Chemotherapy or not (or at least change the drug). If the tumor has grown her course of therapy will have to change. As long as it is stable, we will continue. Please pray that the tumor already shows signs of shrinkage. Also pray that we get through the day. We will arrive at Duke at 8:15 for her blood work, then she goes for her MRI at 9. She has a Dr’s appointment with the neurosurgeon at 11:45, and then when done with that she will get her chemo (which will take 3 hours).
Wednesday, February 28, 2007 7:50 AM
Rebecca had her MRI yesterday and things went GREAT! We got news that the Chemotherapy does appear to be working. Her tumors look like they have shrunk and the enhancement is gone. There was something about the images from the MRI not being done the exact same way as her previous MRI, so the Doctor didn’t have identical images to compare. Something like one was a 4mm slice and the other was a 5mm slice. The doctor also said that these tumors can shrink on their own – but he would like to think it is the Chemo. David and I would also like to think it is the Chemo as well, that we are not putting her through this for nothing. She will have another MRI in 3 months. Please continue to pray that by this time the tumors are gone!
Thursday, April 19, 2007 9:37 AM
Things are still going well for Rebecca. No independent steps yet – but hopefully soon. She is getting more confident of her own cruising along furniture, and sitting down though. Strange to think a few months ago we couldn’t convince this child to bend her knees to sit down (she just went straight legged back over).
Our little girl is almost 2 years old! Time flies. She has been having a few seizure clusters again. Please pray that these get under control again quickly.
Her next Chemo will be on May 1st.